Events

Join Us on Our First Fundraising Event

We are excited to bring you an opportunity to make a difference in the lives of children with Muscular Dystrophy. Our event aims to raise funds for the FIRST-EVER parents-led  independent pre-clinical trial in the United States.

WhenNovember, 11th, 2023

Where: University of Houston - Houston Room: 4455 University Dr. Room 220, Houston, TX 77204

Time: 6:30pm - 10:30pm

Tickets: https://www.eventbrite.com/e/736843858817?aff=oddtdtcreator

Donations: Donations can be made HERE.

Pre-clinical Research's Detailshttps://hopeforluka.org/pages/where-we-are-today-on-our-developments 

Event's Guest Speakers: 

Pat Furlong - PPMD's President

Douglas Levine, PT - CureDuchenne

Read Pat's Bio in PPMD's website: https://www.parentprojectmd.org/pat-furlong-my-story-finding-the-power-of-us-womenandduchenne/

Read Douglas Levine's Bion in CureDuchenne's websitehttps://cureduchenne.org/doug-levine/

Lukian, "Luka" Keyghobadi was born on October, 20th, 2016 at 2:40am at our home in Houston, Texas (He was home-birthed). At 14 months of age, he was diagnosed with Muscular Dystrophy after a routine specialist’s visit. Lukian turns 7 years old on October, 20th of 2023, he is still ambulatory, and we are doing everything in our power to keep him ambulatory as the window of opportunity is closing fast.

Why should you participate in our Fundraising Event? Here are some compelling reasons:

  1. Make a tangible difference: Your donation will directly support independent studies and pre-clinical trials, which are crucial steps in finding effective treatments for children with Muscular Dystrophy. Every dollar you contribute brings us closer to our goal.
  2. Tax deduction: When you donate to our Fundraising Event, you will receive a receipt that can be used for tax deduction purposes. This means that not only are you making a positive impact on the lives of these children, but you may also benefit from potential tax savings.
  3. Join a community: Our Fundraising Event brings together individuals who share a common goal of making a difference. By participating, you become part of a supportive community that is dedicated to improving the lives of children with Muscular Dystrophy.
  4. Raise awareness: By spreading the word about our Fundraising Event, you help raise awareness about Muscular Dystrophy and the challenges faced by these children. Together, we can educate others and inspire them to take action.

Thank you for considering participating in our Fundraising Event. Together, we can make a significant impact on the lives of children with Muscular Dystrophy. Your support is greatly appreciated.

support-our-cause

Support our Cause!

Your donations will enable us to fund scientists to perform independent studies and pre-clinical trials for children with Muscular Dystrophy!

Once donation is made, you will receive an email containing a receipt that can be presented to IRS for tax deduction purposes.   

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